Preface
1. Empirical Studies in Ethics and Psychometric Standards for Measurement
Development of Measurement Instruments in Clinical and Research Ethics
Standards for Instrument Development
Descriptions of Instruments
2. Patient Preference
The Autonomy Preference Index (API)
Instrument Development, Administration, and Scoring
Information Styles Questionnaire (ISQ)
Instrument Development, Administration, and Scoring
Desire for Lenth of Benefit Scale (DLBS)
Desire for Probable Benefit Scale (DPBS)
Instrument Development, Administration, and Scoring
Life Support Preferences Questionnaire (LSPQ)
Instrument Development, Administration, Scoring
Cardiopulmonary Resuscitation Preference Scale (CPR Pref)
Instrument Development, Adminstration, Scoring
Preference of Life-Sustaining Treatment
Instrument Development, Administration, and Scoring
3. Patient Comprehension
Pre-Vignette Knowledge Test
Post-Vignette Comprehension Test
Instrument Development, Administration, and Scoring
Knowledge About Breast Cancer Genetics and BRCA1 Testing
Perceptions of the Benefits, Limitations, and Risks of BRCA1 Testing
Instrument Development, Administration, and Scoring
Deaconess Informed Consent Comprehension Test (DICCT)
Instrument Development, Administration, and Scoring
Standardized Mini-Mental State Examination (SMMSE)
Instrument Development, Administration, and Scoring
5. Advance Directives
Values Assessment and Directives Form (VAD)
Instrument Development, Administration, and Scoring
Instrument Development, Administration, and Scoring
Advance Directive-HIV Questionnaire (AD-HIV)
Instrument Development, Administration, and Scoring
The Medical Directive (MD)
Instrument Development, Administration, and Scoring
Advance Directive Acceptability Questionnaire (ADAQ)
Instrument Development, Administration, and Scoring
Advance Directives Questionnaire (ADQ)
Instrument Development, Administration, and Scoring
End-of-Life Care Decisions Questionnaire (EOLCDQII)
Instrument Developement, Administration, and Scoring
6. Withdrawal of Life Support
Withdrawal of Life Support in Critically Ill Patients
Instrument Development, Administration, and Scoring
Willingness to Withdraw Life Support (WWLS)
Instrument Development, Administration, and Scoring Guidelines
7. Aggressiveness of Care
Decisions About Aggressiveness of Care (DAC)
Decisions About Aggressiveness of Care for Specific Patients (DAC[SP])
Instrument Development, Administration, and Scoring
Aggressiveness of Nursing Care Scale (ANCS)
Appropriateness of Care Questionnaire (ACQ)
Instrument Development, Adminstration, and Scoring
Level of Management in Neonatal Clinical Situations
Instrument Development, Administration, and Scoring
8. Moral Sensitivity
Moral Sensitivity Questionnaire (MSQ)
Instrument Development, Administration, and Scoring
9. Ethical Practice Environment
Instrument Development, Administration, and Scoring
Hospital Ethical Climate Survey (HECS)
Instrument Development, Administration, and Scoring
10. Recipient Selection
Criteria for Selection of Transplant Recipient Scale (CSTR)
Instrument Development, Administration, and Scoring
11. General Issues for Health Professionals
Ethics Consultants' Recommendations (ECR)
Instrument Development, Administration, and Scoring
Rationing Health Care Resources
Some Considered Moral Judgments
Instrument Development, Administration, and Scoring
12. Summary
Appendix: Summary of Instruments
Index
About the Author
