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The Ethics of Research with Children and Young People
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The Ethics of Research with Children and Young People
A Practical Handbook



February 2011 | 176 pages | SAGE Publications Ltd
Ethical issues are a crucial consideration when researchers are working with children and young people. This clear and practical text informs students and researchers about all the relevant laws and guidelines that apply when they are conducting research with children and young people.

The Ethics of Research with Children and Young People cover ethics at every stage of research, and with all kinds of research participants, particularly focusing on those who are vulnerable or neglected. The authors break down the process of researching with children and young people into ten stages, each with its own set of related questions and problems, to help the reader understand the ethical issues which they need to address at each stage of their research.

This is an accessible, practical and passionate book and will be essential reading for anyone looking to conduct research with children or young people.


 
Introduction
 
Defining Some Terms
 
Research Ethics
 
The Purpose of This Book: Starting from Uncertainty and the Question Format
 
Researchers as Insiders or Outsiders
 
The Contents of This Book
 
PART ONE: THE PLANNING STAGES
 
Planning the Research: Purpose and Methods
Two Basic Questions  
Questions about Purpose and Methods  
Is the Research Worth Doing?  
Do Theories Matter?  
Do Viewpoints Matter?  
Do Methods Matter?  
Three Phases in Growing Awareness of Research Ethics  
Three Ethics Frameworks for Assessing Research  
Uncertainty - The Basis of Ethical Research  
Summary of Questions  
 
Assessing Harms and Benefits
Harms  
Benefits  
Risk, Cost, Harm and Benefit Assessments  
Confusion in Risk-Benefit Assessments  
Risk of Distress or Humiliation  
Summary of Questions  
 
Respect for Rights: Privacy and Confidentiality
Legal Rights to Confidentiality  
Opt-in or Opt-out Access  
Practical Respect  
Privacy Rights  
Data Protection Act 1998  
Confidentiality or Acknowledgement?  
Intimacy between Strangers: Research Interviews  
Ethics and the Internet  
Respecting Local Values  
Privacy and Encouraging Freely Given Responses in Face-to-Face Contact  
Does Traditional Ethics Cover Modern Research Experiences and Relationships?  
Summary of Questions  
 
Designing Research: Selection and Participation
Framing the Topics and Extent of the Research  
Combining Respect, Inclusion and Protection  
Does Traditional Ethics Cover Social Exclusion?  
Images and Symbols  
Beyond Inclusion to Participation: Children and Young People as Researchers  
UN-Related Work With Young People  
Respecting Young Researchers' Own Qualities  
Summary Of Questions  
 
Money Matters: Contracts, Funding Research and Paying Participants
Planning, Budgeting and Research Agendas  
Ethics and Funding Sources  
Carbon Costs  
Ethics and Contracts  
Freedom to Publish  
Paying Young Researchers and Participants  
Payments in Context  
Summary of Questions  
 
Reviewing Aims and Methods: Ethics Guidance and Committees
Review and Revision of Research Aims and Methods  
Does Social Research Need Research Ethics Committees?  
Recent Experiences with Research Ethics Committees  
International Standards  
A National Social Research Ethics Forum?  
Summary of Questions  
 
PART TWO: THE DATA COLLECTING STAGE
 
Information
Spoken and Written Information  
Research Information Leaflets  
Leaflet Layout  
Examples of Research Information Leaflets  
Leaflets in Other Languages  
Information in Semi-Literate Societies  
Relevant Research?  
Two-Way Information Exchanged Throughout the Research Study  
Summary of Questions  
 
Consent
Consent and Rights  
The Meaning of Consent  
Consent to Open-Ended Research  
Assent  
Consent and the Law  
Consent by and for Children and Young People  
Double Standards  
Complications in Parental Consent  
Defining and Assessing Competence to Consent  
Levels of Involvement in Decision Making  
Respecting Consent and Refusal  
Consent to Longitudinal Research  
Consent and Secondary Data Analysis  
International Standards of Consent  
Research and International Contexts  
Why Respect Children's Consent?  
General Questions about Children's Consent  
Summary of Questions  
 
PART THREE: THE WRITING, REPORTING AND FOLLOW-UP STAGES
 
Disseminating and Implementing the Findings
Involving Children in Data Analysis  
Dissemination: Getting to the Heart of Debate and Change  
Dissemination and Implementation: Children, Young People and Adults Working Together for Change  
Problems with Dissemination  
Creative Ways Round the Problems  
Dissemination and the News Media  
Critical Readers and Viewers  
Underlying Attitudes to Children and The 3 Ps  
Summary of Questions  
 
The Impact on Children
What Collective Impact Can Research Have on Children and Young People?  
Reviewing the Impact of Research on Children  
Positive Images  
Summary of Questions  
 
Conclusion
Ways Forward for Individuals and Teams  
Questions that Cannot be Solved by Individuals Alone  
The Need for Social Research Ethics Authorities  
Summary of National Policy  
Is the Research Worth Doing?  
And Finally  
 
References And Index

Good consideration of the complex area of research with children.

Mrs Sam Lloyd-Parry
School of Health & Social Care, Coleg Sir Gar
December 5, 2012

This book is a very practical book for students to use in their work based learning modules. There is a good mix of theory behind the concepts while having a clear logical process to follow.
I will be recommending this text to students in all years of the foundation degree in Early years.

Mrs Diane Forsyth
Early Years, Peterborough Regional College
September 17, 2010

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