The Handbook of Ethical Research with Ethnocultural Populations and Communities
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The Handbook of Ethical Research with Ethnocultural Populations and Communities


© 2005 | 400 pages | SAGE Publications, Inc

What steps can be taken to incorporate a cultural perspective to the evaluation of research risks and benefits? How can investigators develop and implement respectful informed consent procedures in diverse cultural and language communities? What are ethical pitfalls and successful approaches to engaging in community and participant consultation? The Handbook of Ethical Research With Ethnocultural Populations and Communities, edited by Joseph E. Trimble and Celia B. Fisher, addresses these and other key questions in the first major work to focus specifically on ethical issues involving work with ethnocultural populations. Filling gaps and questions left unanswered by general rules of scientific conduct such as those embodied in federal regulations and professional codes, this Handbook will help guide ethical decision making for social and behavioral science research with multicultural groups for years to come.  

Key Features:

  • Brings together for the first time a multidisciplinary blend of national leaders who specialize in the area of conducting research with ethnocultural populations
  • Addresses existing issues at methodological, procedural, and conceptual levels for the responsible conduct of research in the field
  • Incorporates as background a summary of leading research and scholarship on various topics framed within the authors' personal successes, challenges, and failures in the dynamic process of creating a multicultural research ethic
  • Includes real-world case examples to illustrate significant ethical principles in the research venture more concretely

The Handbook is designed for graduate and advanced undergraduate students in Psychology and will also be valuable for social and medical science researchers and institutional review boards. This book will also be of interest to ethicists and bioethicists, policy makers, and foundations that fund research involving multicultural populations.   

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Acknowledgements
Richard Suinn
Preface
Joseph E. Trimble and Celia B. Fisher
Introduction: Our Shared Journey: Lessons from the Past to Protect the Future
 
PART I. FOUNDATIONS OF ETHNOCULTURAL RESEARCH AND RESEARCH ETHICS
Celia B. Fisher and Kathleen Ragsdale
1. A Goodness-of-Fit Ethic for Multicultural Research
John Fantuzzo, Christine McWayne, and Stephanie Childs
2. Scientist-Community Collaborations: A Dynamic Tension Between Rights and Responsibilities
Nancy Busch-Rossnagel
3. First, Do No Harm: Culturally Centered Measurement for Early Intervention
 
PART II. RESEARCH ETHICS CHALLENGES INVOLVING DIVERSE ETHNOCULTURAL GROUPS
Scyatta A. Wallace
4. Addressing Health Disparities Through Relational Ethics: An Approach to Increasing African American Participation in Biomedical and Health Research
Tim D. Noe, Spero M. Manson, Calvin Croy, Helen McGough, Jeffrey A. Henderson, and Dedra S. Buchwald
5. In Their Own Voices: American Indian Decisions to Participate in Health Research
Gerald V. Mohatt and Lisa Thomas
6. “I Wonder, Why Would You Do It That Way?" Ethical Dilemmas in Doing Participatory Research With Alaska Native Communities
Jean Lau Chin, Jeffery Scott Mio, and Gayle Y. Iwamasa
7. Ethical Conduct of Research With Asian and Pacific Islander American Populations
Felipe Gonzalez Castro, Rebeca Rios, and Harry Montoya
8. Ethical Community-Based Research With Hispanic or Latina(o) Populations: Balancing Research Rigor and Cultural Responsiveness
Dina Birman
9. Ethical Issues in Research With Immigrants and Refugees
 
PART III. SOCIALLY SENSITIVE RESEARCH INVOLVING ETHNOCULTURAL FAMILIES AND COMMUNITIES
Katherine Ann Gilda Elliott and Anthony Urquiza
10. Ethical Research With Ethnic Minorities in the Child Welfare System
Ana Marie Cauce and Richard H. Nobles
11. With All Due Respect: Ethical Issues in the Study of Vulnerable Adolescents
Susan Krauss Whitbourne, Joshua R. Bringle, Barbara W. K. Yee, David Chiriboga, and Keith Whitfield
12. Ethical Research Dilemmas With Minority Elders
Fred Beauvais
13. Changing Models of Research Ethics in Prevention Research Within Ethnic Communities
Merrill Singer and Delia Easton
14. Ethnographic Research on Drugs and HIV/AIDS in Ethnocultural Communities
 
PART IV. THE RIGHTS AND RESPONSIBILITIES OF INDIVIDUALS, COMMUNITIES, AND INSTITUTIONS
Copeland H. Young and Monica Brooker
15. Safeguarding Sacred Lives: The Ethical Use of Archival Data for the Study of Diverse Lives
Janet E. Helms, Kevin T. Henze, Jackquelyn Mascher, and Anmol Satiani
16. Ethical Issues When White Researchers Study ALANA and Immigrant People and Communities
Joseph E. Trimble and Gerald V. Mohatt
17. Coda: The Virtuous and Responsible Researcher in Another Culture
 
Name Index
 
Subject Index
 
About the Editors
 
About the Contributors

"A timely topic . . . [t]his might be an excellent book as a text for a graduate class.  All APA-approved clinical and counseling programs have to teach a class on ethics and this would be a good reader, or supplementary reader, for such a class."

Ana Mari Cauce
University of Washington

In recent years, there has been much criticism in the literature about the development and quality of research in the area of the psychological study of ethnic minority issues. This criticism, whether real or imagined, has nevertheless influenced the kind of research that has emerged during the past few years. This Handbook, edited by Joseph Trimble and Celia Fisher, is, in my opinion, an outstanding response to this criticism. They have provided a book that clearly articulates an important ethical imperative: As the faces of America changes, so too must we as researchers transform our research designs to be more culturally inclusive. This Handbook pokes, prods, and pushes its reader to shift research paradigms, creating for some a dialectical tension that challenges preconceived notions of ethnic minority research. Imagine, as Trimble and Fisher point out, that 'soon the people of America will be better described as America's People of Color.' If such is the case, then those of us who choose to engage in this research must be prepared to acknowledge and understand that as scholars we must lead by example. This Handbook provides the reader with all of the tools to do so and must be taken seriously by all those who want to participate in the conversation.

Donald B. Pope-Davis, Ph.D.
University of Notre Dame
Key features
  • Brings together for the first time a multidisciplinary blend of national leaders in the field of conducting research with ethnocultural populations.
  • Addresses challenges at methodological, procedural, and conceptual levels for the responsible conduct of research in the field that reflects the unique historical and socio-cultural reality of ethnic and racial groups.
  • Fills gaps and questions left unanswered by such general rules of scientific conduct embodied in federal regulations (e.g., DHHS) and professional codes (e.g., APA Ethic Code).
  • Incorporates as background a summary of leading research and scholarship on various issues framed within the authors' pesonal successes, challenges, and failures in the dynamic process of creating a multicultural research ethic.
  • Includes real-world case examples to concretely illustrate significant ethical principles ijn the research venture.

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ISBN: 9780761930433

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